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Political Notes from the Center and Elsewhere

Religion: Many Voices


  • Copyright © 2004-2009 Alan G. Ampolsk
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« April 2007 | Main | June 2007 »

Help Is On the Way...

...or so it would seem.  Last Friday, had the Visiting Nurse Service/Partners in Care people in to see my father and start an assessment.  We're now waiting on the written response and the next meeting.  But the signals are good.  For at least two years now I've been screaming for case management -- maybe it was just my own incompetence that kept me from finding a case manager -- but it turns out that's part of the program, so it looks like I'm going to get my wish.  Beyond that, good rapport all around.  I'm continually struck by the quality of the VNS personnel.  More broadly, I'm struck by how much more human and well rounded are the people that I meet in the helping professions... as opposed to, say, my many corporate friends.  Yes, it's dangerous to speak in generalities, but at the same time I can't help thinking that there's something in the corporate environment that brings out weakness and selfishness and general unreliability -- and there's something in caregiving that does the opposite.  Or maybe I've just been lucky on the one hand and unlucky on the other -- thankfully haven't met too many nightmare caregivers yet.  So, best to avoid conclusions for now.  But will leave the question hanging -- is there something in the business environment that makes people less than their best?

To be continued... or dropped... as seems most appropriate...

Cognition Notes from a Saturday Afternoon

Visited my father as usual on Saturday afternoon and... not quite as usual... began a gentle (I hope) exploration of the possibility that we may need to get him more help, or different help, or change his living arrangements.  He was surprisingly open to it (surprising because he likes his independence and needs the sense that he's still fully functional).  And he was more lucid than he has been recently -- worth noting that while he has enormous difficulty synthesizing facts(it's dark out) into larger facts (it's night), he still has a strong sense of identity and reasonably full command of complex emotions.  And at some more basic level he knows what situation he's in, and understands that help is in order.  He likened himself to "a baseball player being told to hang it up" (I suggested that maybe he could move over to coaching) and also talked at length about what a good life he's had (which is impressive -- not everyone with his history would necessarily come to that conclusion).  He seems enthusiastic about Visiting Nurse Service as the care provider -- he has a good history with them.

So it seems we're stable, at least until we're not.

More work to do this week and in coming weeks.

But was able to take in a little music in a better frame of mind than I expected.

Alzheimer's, Ageism, and Getting Radicalized

So my father calls just before 4 a.m. in distress because when he turns the lights off the room gets dark, and his Meals On Wheels delivery hasn't come, and the digital clock says three-five-six and he doesn't know what that means.  It's crazy, he says, and he wants to know if the same thing is happening where I am.

I tell him it's four in the morning.

He asks me what he should do and I say there are many possibilities, but maybe the best thing is to turn off the light in the bedroom and go to sleep for a few hours, and when he gets up the food will have come...

No one is calling this Alzheimer's yet.  The reason they're not calling it Alzheimer's is because it doesn't really matter what you call it.  His sister died of Alzheimer's, and he's past 84, and when you look at the stats and the behaviors it's hard to imagine what else it could be.  But our primary care physician holds the line at calling it an impairment, and adding that it's significant.  And that's all that needs to be said.  No sense in putting a frightening word into play, because whether it's in play or not, we'll still have to go to the elderlawyers, and get the assessment from the Visiting Nurse Service, and decide what accommodations are best, and take a series of actions...

I mention all this for several reasons -- first, to explain the continued silence on the blog, and second, to anticipate future entries that will reflect a growing degree of radicalization.  And third, because I know I'm not remotely alone in all this.  So I'll share for whatever it's worth.  I know -- because I've been on similar territory before -- that I'm about to start a long series of rounds with well-meaning, underfunded agencies that mostly send you mimeographed lists of resources and leave you on your own with respect to navigating them (Visiting Nurse Service will be an exception in this regard - they're good, and hands-on).  It reminds me how thin the safety net is, and the state of denial we're all in.  Here we all are in the middle of a big demographic catastrophe, and the fact is we've got hardly any base of support...

Occasionally I stop thinking about that and start thinking instead about the number of friends and colleagues I've got who can't find full-time work because they're over 40 and therefore too expensive and therefore they're making do on the fringes of professional society, more or less.  Professional society, please note -- I'm not even starting to talk about actual poverty and even deeper crises in the labor force...

I mention the white-collar angle, along with the aging-parent-entropy angle, because it suggests to me that, although no one's really focused on it, when you take the two together you've got the seeds of a deep and lasting radicalization.

I know I'm not the centrist I used to be.  I don't think I'm a doctrinaire leftist, but I'm beginning to think that there are no centrists in foxholes.

I wonder how this will begin to play out on a national political scale.

Which is a useful form of wondering, because it distracts me from what's under my nose.

On both counts -- more to follow.  Watch this space.

I Should Know Better...

I should know better than to re-launch the blog just as a major project hits...

Anyway, am here now.

Did make it to Fisher Hall last night for The Tristan Project.  So I feel all refreshed.  It's sort of like I stayed in a Holiday Inn Express.  Or, more accurately, hallucinated in one.

More here.